Breaking the Waves #1 © 2013 Jane Waterman
Living with invisible illness

A Day in the Life – February 2016

Do you ever have those things you long to get back to, but no matter how much you try to marshal your energy, it doesn’t happen? Writing in my blog is one of those things. I actually have written in my blog – since my last entry on Christmas Day,

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Presence @ 2014 Jane Waterman
Invisible illnesses

Being Okay with What Is

Letting life be what it is at any given moment is not something that comes naturally to us. I was reminded of this as a student from my new chair yoga class (wow!) observed that I looked tired. I confirmed that I was, and she asked what I would be

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A Little Rain Must Fall © 2012 Jane Waterman
Living with invisible illness

A Day in the Life with Sjogren’s

This post is part of the World Autoimmune Arthritis Day 2014 Blog Carnival. The theme of this year’s WAAD virtual conference is “A Day in the Life of an Autoimmune Arthritis Patient”. A link to the WAAD site follows this post. Blessings, Jane. A Day in the Life with Sjogren’s

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Going Home © 2013 Jane Waterman
Living with invisible illness

Travelling While Ill

It was June 25th when I boarded the plane for Australia, where I had spent 30 years of my youth growing up. I hadn’t been there in 14  years. I hadn’t seen members of my family in 13 years (14 years in some cases). I wanted to do this, but

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Love © 2002 Carmen Waterman
Invisible illnesses

Guest Post: Caregiving 101

I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 9 #HAWMC – As a parent with health conditions or parent to a child(ren) with health conditions, what do you hope you’re doing right? Today I’m thrilled to present the first guest blog post on Blackbird at Night, written

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Breaking the Waves #1 © 2013 Jane Waterman
Interior life

(Not) Identifying With Being A Sick Person

As strange as it may sound, approaching my 23rd anniversary of being a sick person (I remember it well – the food poisoning, giardia or whatever it was that triggered the whole thing and led to me spending most of my 24th birthday puking),  I think one of my best

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Immunity © 1994 Jane Waterman
Invisible illnesses

Fatigue and Invisible Illness

There are many types of fatigue, some of which are unknown to those who have never experienced a chronic invisible illness. The first kind is the result of physical exertion, which generally leads to an almost pleasant tiredness, as it is often accompanied by the knowledge of a job well

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Angel #2 © 2012 Jane Waterman
Creativity

Dreams, Art and Invisible Illness

Day 24 – My own prompt: What dreams and goals have emerged for you as a consequence of being ill? “When one door of happiness closes, another opens; but often we look so long at the closed door that we do not see the one which has opened for us.”

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After Munch #4 © 2012 Jane Waterman
Invisible illness advocacy

Working (or Not Working) With an Invisible Illness

Day 14 – My own prompt for today: ‘Talk about the issues involved in working (or not working) with an invisible illness. Is it possible to find a life-work balance with a chronic invisible illness?’ Note: These problems aren’t unique to people with invisible illnesses. However, this is my area

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Stained Glass © 2010 Jane Waterman
Creativity

Care Package for People with Sjogren’s and Depression

Day 9 – Community Care Package. Create the perfect care package for your members or fellow patients. Note: A Sjoggie is a person with Sjogren’s syndrome. A care package is all about comforting. Happily, there are a lot of things on this list that will comfort both people with depression

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