Transformation @ 2014 Jane Waterman
Living with invisible illness

Life Interrupted, Again

I had big hopes for this year. I still do. However, the difference is those hopes have been modified from the impossible, unrealistic ones I had grasped for as I fled 2013, and have reformed as smaller, realistic, and somehow more magnificent hopes – ones that may one day manifest.

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Going Home © 2013 Jane Waterman
Living with invisible illness

Travelling While Ill

It was June 25th when I boarded the plane for Australia, where I had spent 30 years of my youth growing up. I hadn’t been there in 14  years. I hadn’t seen members of my family in 13 years (14 years in some cases). I wanted to do this, but

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Pain Study © 2013 Jane Waterman
Mental health challenges

Grasping for Answers

I have mentally begun this post for weeks, but a chronically ill life has a way of shaking loose any idea of control over one’s destiny. Anyone who has been ill for a while will understand what I mean when I say I’m suffering a bad case of doctor fatigue.

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Where I Stand © 2013 Jane Waterman
Interior life

Where I Stand

I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 16 #HAWMC – Tell us 3 things that are true about you, your condition, or your Health Activism. Tell us 1 lie. Will we be able to tell the difference? I’m improvising with this prompt. I’m in a weird

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After Vincent #5 © 2012 Jane Waterman
Invisible illness advocacy

Activist Love

I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 14 #HAWMC – Thank a few of your fellow Health Activists for what they have done. Call them out by name or twitter handle. Share your love. I concur with many of my fellow health activists, and as I

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Love © 2002 Carmen Waterman
Invisible illnesses

Guest Post: Caregiving 101

I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 9 #HAWMC – As a parent with health conditions or parent to a child(ren) with health conditions, what do you hope you’re doing right? Today I’m thrilled to present the first guest blog post on Blackbird at Night, written

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Garden of Time © 2003 Jane Waterman
Creativity

To My Future Self

I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 6 #HAWMC – Write a letter to an older you (tell us what age you’re writing to!). What do you want to ask yourself? What lesson do you want to make sure you remember? I’m writing to my

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Angel #2 © 2012 Jane Waterman
Creativity

Dreams, Art and Invisible Illness

Day 24 – My own prompt: What dreams and goals have emerged for you as a consequence of being ill? “When one door of happiness closes, another opens; but often we look so long at the closed door that we do not see the one which has opened for us.”

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After Munch #4 © 2012 Jane Waterman
Invisible illness advocacy

Working (or Not Working) With an Invisible Illness

Day 14 – My own prompt for today: ‘Talk about the issues involved in working (or not working) with an invisible illness. Is it possible to find a life-work balance with a chronic invisible illness?’ Note: These problems aren’t unique to people with invisible illnesses. However, this is my area

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Stained Glass © 2010 Jane Waterman
Creativity

Care Package for People with Sjogren’s and Depression

Day 9 – Community Care Package. Create the perfect care package for your members or fellow patients. Note: A Sjoggie is a person with Sjogren’s syndrome. A care package is all about comforting. Happily, there are a lot of things on this list that will comfort both people with depression

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