4 Responses

  1. Carmen Waterman (@Ca
    | Reply

    My heart smiles every time I hear this song and it will always bring you close to me. I first heard it on your own homepage almost 16 years ago. You introduced me to Enya's music which I love.

    Your grace and spirit shines out as a beacon of hope. I'm so proud of you, I know and see everyday the pain and challenges you face. I am so disillusioned with doctors and the lack of care in the field. You deserve to be heard, and believed. There is so much suffering and it is so important to not give up looking and knowing there will be something that will bring ease to what you have been struggling with for so long.

    Speaking up is important and we will find a way to change things so you can focus on your hopes and dreams too.

    I love you

    • Jane Waterman
      | Reply

      I had not even thought about that particular watermark – the one where you entered my life and changed it for the better, and made me feel like someone heard me and cared. Thank you for that. I can't believe it's been 16 years.

      Please know that it is only with your support that I can navigate all the doctors and the false hopes, to find my way back to the true.

      I love you,

      Jane

  2. Lorna
    | Reply

    Hi Jane, I just stopped by to leave you a note to say I'm thinking of you. I have been distracted lately from everything due to the loss of my dad. I'm still in the middle of all the details that go on afterwards. I stopped to listen to the music. I have loved Enya forever! The first song I heard by her was Orinoco Flow.

    I hope your pain is at a more manageable level, I'm dealing with pain in my right abdomen as well. So far there has been no explanation for it, my doctor keeps telling me the next time it gets REALLY bad to go to the ER and a specialist will have to deal with it. I hope you get some answers and I hope you're doing great! Enjoy the weekend.

    • Jane Waterman
      | Reply

      Dear Lorna,

      I'm so very sorry to hear about losing your Dad, hon. *hugs* I know how difficult it is – how strange and disconnected I felt for so many months afterwards. Please take good care of yourself. <3

      Enya's music is lovely. I've used it to relax for many years. It seems so simple and yet so many layered, it can take you on incredible journeys: Orinoco Flow is very much like that!

      I'm sorry you're dealing with that pain too. It's a symptom that started in early 2011 for me. The doctors say it's musculoskeletal (i.e. due to my fibromyalgia) or neuropathic. I don't think it's either. It has been getting worse the past weeks. My doctor gave me gabapentin (believing the specialists that it's 'nerve pain'), which has done nothing, but she also gave me morphine for the acute pain episodes, which helps. Last time I saw her, she suddenly started wondering if it was gall bladder related because that's where the pain is situated, but I'm going to have to keep pushing to get that possibility explored.

      Coming up I have a gastroenterologist appt, as I've had severe constipation since early March (the doc thinks that's what's causing my pain), an abdominal ultrasound, and then a new rheumy appt in July. I haven't had a rheumy for about 4 years, so I'm hoping he's open-minded about what might be causing this. I'm not too hopeful about the doctors given the past two years, but it would be nice if I was wrong!

      Like you, I'm ready to go to the ER next time I have a bad episode. Enough is enough!

      Please take care of yourself in the coming months, and know I'm thinking of you and sending healing energy your way. Thanks for stopping by to comment.

      Many blessings,

      Jane

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