8 Responses

  1. Jane
    | Reply

    A quote from the Sjogren's National Patient Conference 2013 in Bethesda, MD, "You are braver than you believe, and stronger than you seem, and smarter than you think". – Christopher Robin

    • Jane Waterman
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      A wonderful quote for so many people I know! Thank you for sharing it. :)

  2. Barb
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    I love your writing. Your authenticity is welcome and needed. I wish I had your courage. I wish you had less pain, way less. Love, Barb

    • Jane Waterman
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      Dear Barb,

      Thank you – it means a lot to me that you took the time to read it. I am trying to feel that courage today. Honestly, lately I feel afraid a lot. The struggle within myself – just to be kind on those days when I can't do anything – feels overwhelming. I keep the hope that I will learn to accept "what is" with grace each day.

      Lots of love,

      Jane

      xxxx

  3. anet37
    | Reply

    Complexity seems to walk beside you Jane.

    It's such a problem when you are either hypersensitive to drugs or you have an idiosyncratic response to them. Those are the times when "run of the mill" sounds like a very good thing. And you are definitely not run of the mill.

    It's good to see you writing again. Do you have a garden this year? I have been walking around the neighbourhood taking pictures of other people's flowers.

    On Monday I saw a busker balancing on skateboards and juggling 3 flaming clubs in the air. I honestly just could not even look. Much too dramatic and dangerous, yet people do feats of heroism every day only not so flashy and profitable.

    • Jane Waterman
      | Reply

      Thanks for writing, Annette. Yes, it's good to be writing something again. As you see from this post I was not really in a good place, so it took me a while to get back to it. I'll send you a longer note in email soon!

      Take care,

      Jane

  4. India Ham
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    My dear Jane, I love your writing but hate the fact that you have to deal with this. Pain is something that should be taken seriously no matter what and if every medical worker had compassion that would make make some pain less difficult. I remember feeling patronized by those in the medical profession when I was having seizures in high school. Apparently some of the doctors I saw thought I was faking it. The massive headaches were supposedly fake as well. Imagine the surprise after an MRI saw a tumor. Hmmm… Maybe I wasn't making it up after all. I'm sorry you aren't getting the answers you need but my hope and prayer for you is for relief in the pain, the feeling and the knowing that so many people love and care for you and are holding you up in their hearts and that you will have your needs met (mentally , physically, and spiritually). Hang in there you brave beautiful soul. You encourage me in so many ways. Love and light,
    India

    • blackbirdatnight
      | Reply

      Dearest India,

      Thank you for your kind and supportive letter. I feel totally blessed to have a friend and heart sister like you in my corner. I'm sorry that you've gone through these same issues of being ignored when you have a genuine health problem. It's so frustrating. Knowing that I'm thought of by someone whom I love and regard also as one of the world's most beautiful souls, I just feel blessed to know you're on my side. Please know that you also give me hope and encouragement, even through your sometime funny and often cute posts on my FB wall. I love my beagle sister in spirit! :)

      Lots of love always,
      Jane

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