Do you ever have those things you long to get back to, but no matter how much you try to marshal your energy, it doesn’t happen? Writing in my blog is one of those things. I actually have written in my blog – since my last entry on Christmas Day,
In recent memory, as the saying goes, my experience has been higher than usual levels of chronic fatigue associated with my Sjogren’s. In the early years of my illness, I believed I successfully pushed through these times, and just disregarded the 3-hour naps aka crashes that would happen after a
This post is part of the World Autoimmune Arthritis Day 2014 Blog Carnival. The theme of this year’s WAAD virtual conference is “A Day in the Life of an Autoimmune Arthritis Patient”. A link to the WAAD site follows this post. Blessings, Jane. A Day in the Life with Sjogren’s
I had big hopes for this year. I still do. However, the difference is those hopes have been modified from the impossible, unrealistic ones I had grasped for as I fled 2013, and have reformed as smaller, realistic, and somehow more magnificent hopes – ones that may one day manifest.
After so many years of battling with depression, it shouldn’t fail to surprise me that I can be so horribly wrong about its power and the lies it tells. I’d like to think that after so many years of fighting the good fight, I’d achieved some kind of mastery over
One of the most difficult things I have encountered recently is not the challenges caused by life situations, or the challenges associated with health problems. The challenges that rock my world are more fundamental ones: ones that don’t require a chronic illness to understand, but ones that may be part
It was June 25th when I boarded the plane for Australia, where I had spent 30 years of my youth growing up. I hadn’t been there in 14 years. I hadn’t seen members of my family in 13 years (14 years in some cases). I wanted to do this, but
I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 11 & 12 #HAWMC – Write about your favorite health iPhone app? and If you could go back in time and talk to yourself (or your loved one) on the day of diagnosis, what would you say? I have some
I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 5 #HAWMC – If I could do anything as a Health Activist… Think big today! Money/time/physical limitations are no longer an issue. What is your biggest goal that is now possible? Today I woke up on the realist
As strange as it may sound, approaching my 23rd anniversary of being a sick person (I remember it well – the food poisoning, giardia or whatever it was that triggered the whole thing and led to me spending most of my 24th birthday puking), I think one of my best