In recent memory, as the saying goes, my experience has been higher than usual levels of chronic fatigue associated with my Sjogren’s. In the early years of my illness, I believed I successfully pushed through these times, and just disregarded the 3-hour naps aka crashes that would happen after a
It’s been less than two days since my counsellor and Mrs Blackbird both agreed that I need to take a month’s stress leave to buffer my depression, but I already feel like the ice beneath the fine powder of yesterday’s first snow – cracking. Having to take ‘stress leave’ is
I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 14 #HAWMC – Thank a few of your fellow Health Activists for what they have done. Call them out by name or twitter handle. Share your love. I concur with many of my fellow health activists, and as I
I wrote a little the other day about my daughter, A-, who was diagnosed this year with bipolar, and is currently battling a severe case of winter depression. This morning she came to me and said, “I wish I was still manic, like I was in the summer.” I asked why
Day 25 – How have your goals as a patient/advocate/person evolved? My goals as a patient and person have evolved in so many ways, as I’ve talked about in several posts this month. And although I didn’t really recognize it, I have been an advocate for some time and that
Day 24 – My own prompt: What dreams and goals have emerged for you as a consequence of being ill? “When one door of happiness closes, another opens; but often we look so long at the closed door that we do not see the one which has opened for us.”
Day 13 – Book report. What’s your favourite book and how can you tie it to your health or life? “I inhabited a territory of loneliness which resembles the place where the dying spend their time before death, and from where those who do return, living, to the world bring,
Day 9 – Community Care Package. Create the perfect care package for your members or fellow patients. Note: A Sjoggie is a person with Sjogren’s syndrome. A care package is all about comforting. Happily, there are a lot of things on this list that will comfort both people with depression
I once heard it said that catharsis, on its own, does not lead to relief from our sufferings. I don’t think I truly understood that statement until last night. In the small hours yesterday, I took the opportunity to blog anonymously on a writing prompt related to something difficult, and
As much as I want to write, I can’t find a starting place, so I’m going to use one of Natalie Goldberg’s ideas from ‘Writing Down the Bones’. I remember… I remember the year I was ten or eleven years old. We lived in a huge rented house, with dark