In recent memory, as the saying goes, my experience has been higher than usual levels of chronic fatigue associated with my Sjogren’s. In the early years of my illness, I believed I successfully pushed through these times, and just disregarded the 3-hour naps aka crashes that would happen after a
I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 14 #HAWMC – Thank a few of your fellow Health Activists for what they have done. Call them out by name or twitter handle. Share your love. I concur with many of my fellow health activists, and as I
I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 10 #HAWMC – It’s often hard to like pictures of ourselves – post your favourite picture of yourself. Though today is technically “Wordless Wednesday,” tell us why it’s your favourite and what it means to you. Being wordless is
I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 1 #HAWMC – Why you write – tell us a little bit about why you write about your health online and what got you started. Why do I write? My thoughts about my reasons for writing changed several
From Jane: I apologize for the lapse in time between posts. On March 1st, 2013, my wife’s mother died. It was 18 years to the day of my father’s death in the antipodes, so many miles and years away. In the following week, my wife and I helped her stepfather
Day 23 – What’s something your doctor taught you or you taught your doctor? The, dare I say it, positive experiences I have with medical doctors (MDs) could probably fit on a very small piece of paper, so as I was trolling around my brain on a different topic altogether,
Day 22 – Write about change In a recent post, I talked about invisible illness and the process of subtraction: how illness whittles away at one’s health, work life, family, relationships/connections, and more. However, not all changes related to invisible illness are bad. I’m going to highlight some of the
I find myself wandering in a strange space – like Walter Tevis’ Man Who Fell to Earth, an alien inside the confines of a human body. What began today as a thought experiment, inspired by reading Tara Brach’s chapter on “Coming Home to Our Body”, I feel like I have
Last night’s entry was made in the middle of the night, sometime after I crashed from exhaustion, and before I dragged myself up this morning. I love writing in the middle of the night, if I can do it. It used to be easy, but as anything with age, it
I’m late with this entry because I was and am tired. I fell asleep and woke up past midnight, thanks to one of the dogs needing to go outside. Like last night, I feel strangely out of words. In a few hours, I’ll see my counsellor for a one-on-one for