I’m taking part in WEGO Health’s Health Activist Writer’s Month Challenge Day 2 #HAWMC – Introduce your condition(s) to other Health Activists. What are 5 things you want them to know about your condition/your activism? Sjogren’s Syndrome – Like me, you may have never have heard of it before you or a
There are many types of fatigue, some of which are unknown to those who have never experienced a chronic invisible illness. The first kind is the result of physical exertion, which generally leads to an almost pleasant tiredness, as it is often accompanied by the knowledge of a job well
“Rain fell too, on the day they took you from me. It was not like this rain, which struck the dirty window and filled the barren room with its rhythm. That rain was different: flooding my thoughts, and driving me into a frenzy. I supposed that was why they took
When I was diagnosed with primary Sjogren’s Syndrome by Dr A-, some 12 years after I first became ill in 1990, I was relieved to have a name for the invisible illness that had wracked my life with its silent misery. However, there was one part of the diagnosis that
A quandry for any writer, not just a blogger, arises at those times when to tell your story means to risk betraying a confidence, either that of a loved one or a villain. The former, you wish to protect with all your heart; the latter, to avoid, if only to
Day 25 – How have your goals as a patient/advocate/person evolved? My goals as a patient and person have evolved in so many ways, as I’ve talked about in several posts this month. And although I didn’t really recognize it, I have been an advocate for some time and that
Day 23 – What’s something your doctor taught you or you taught your doctor? The, dare I say it, positive experiences I have with medical doctors (MDs) could probably fit on a very small piece of paper, so as I was trolling around my brain on a different topic altogether,
Day 22 – Write about change In a recent post, I talked about invisible illness and the process of subtraction: how illness whittles away at one’s health, work life, family, relationships/connections, and more. However, not all changes related to invisible illness are bad. I’m going to highlight some of the
Day 20 – Write about alternative treatments/regimens/medicine. What do you support? What is crazy? Today’s prompt amuses me. Alternative treatments – what is crazy? What, indeed? I could wax lyrical about people in tin foil hats dancing naked under the light of the full moon, or sitting on the bottom
There have been many books, articles and even papers in refereed journals written to explore the linkages between creativity and mental illnesses such as depression, bipolar and schizophrenia. I have read convincing arguments for both weak and strong links between creativity and mental illness. I personally believe there is a